Prader-Willi Syndrome Program

Prader-Willi syndrome (PWS) is a genetic disorder that can lead to obesity, developmental delays and other serious conditions. In order to improve the outlook for each child with PWS, it is important that experienced doctors work with families to determine an individualized diagnosis and treatment plan as early as possible.

World-class treatment

Our multidisciplinary team of endocrinologists, geneticists and nutritionists have long histories of treating patients with PWS. This deep experience and knowledge allows us to offer world-class treatment to children in our program. It also means that, when medically appropriate, we are comfortable providing services such as growth hormone and sex steroid treatments.

In addition, we work closely with a wide array of other subspecialists, including sleep specialists, occupational and physical therapists, orthopedists, gastroenterologists, psychiatrists, psychologists, and urologists.

Our team is also at the forefront of research for many of the most important issues facing patients with PWS and their families. Research topics include pharmacological treatments, stress and coping management for parents, and causes of morbidity and mortality. We are also actively involved with communities and organizations that are trying to care for patients with PWS and find a cure.